My [21F] mother [46F] hates my sister [6F] with Down Syndrome and blames her for our dad leaving us. She won’t let me take custody of her and I don’t know how to continue living like this

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At 21, she’s not just a sister—she’s a lifeline for her 6-year-old sibling with Down Syndrome, filling the void left by a mother who blames the child for their family’s unraveling. In Austin, Texas, this young woman juggles two jobs, her sister’s therapies, and a home where their mother, once shattered by divorce, now treats them like roommates. Her dream? To gain custody and give her sister the love their mother withholds. But legal hurdles and a tight budget loom large, while her own youth slips away under the weight of responsibility.

This Reddit post, raw with pain and resolve, isn’t just about caregiving—it’s a cry for freedom from a toxic household and a plea to reclaim her life without losing her sister. As she navigates her mother’s indifference and her own buried dreams, the internet rallies with advice, from legal steps to self-care. Her story begs the question: how do you save someone you love without losing yourself?

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‘My [21F] mother [46F] hates my sister [6F] with Down Syndrome and blames her for our dad leaving us. She won’t let me take custody of her and I don’t know how to continue living like this’

To preface this, we live in Austin,TX. My mom was 39 when she got pregnant with my sister and a few days after her diagnostic screening confirmed it was a baby with Down Syndrome, our dad moved out and filed for divorce. Without my dad's income, mom had to sell our house and we moved to a different neighborhood.

It was nice, but it wasn't an upper middle class neighborhood like the one we used to live in. During her pregnancy, she was committed to being the best mom to my sister (let's call her Mary) and me. A few weeks after giving birth to Mary who, other than Down Syndrome, had no other health issues, my parent's divorce was finalized.

Mom got full custody and dad got visitation rights twice a week, but I refused to see him and he didn't want anything to do with Mary. To this day, we don't have a relationship at all. Him and mom were never very hands on parents, I had a lot of nannies growing up, but I never thought both of them would end up being so fucked up.

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The finalization of the divorce hit my mom like a truck and she spiraled into postpartum depression. I was a high school freshman when all of this happened and, on top of having to move to a different place where I didn't know anyone, I had to step up and help take care of my sister because my mom couldn't do it alone.

While I was at school, she would do the most basic things like give Mary the bottle and change her diaper, and then she would wait for me to come home and 'help' with the chores and Mary. To 'help' was to clean up the house a bit, take care of Mary for the rest of the day

(nap time, play time, sensory time, physical therapy at home following the activities spreadsheet her physical therapist gave us, changing her diapers, feeding her for the rest of the day and night, bathing her and putting her down to sleep), order dinner because neither one of us was a great cook and also find time to study and do schoolwork.

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Even though my mom had 10 weeks of paid maternity leave, she decided to go back to work when Mary was 8 weeks old. She did find the best daycare for her and I was honestly relieved knowing that Mary would be properly cared for while I was at school.

My mom started to get better once she was back to work but she still didn't care that much about Mary, so I called her sister - my aunt - and told her everything. She offered to find my mom a good therapist and pay for it, and my mom agreed and she started therapy.

Something I feel is important to mention about my aunt, she married into a wealthy family and lives in Georgia. She has 3 daughters and a son (aged 16, 20, 23 and 25), and she's very conservative. While she's never openly talked about Mary having Down Syndrome, it's visible that she's bothered by it.

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She's especially bothered by the fact that my mom lost a 'good marriage and a good home' because of Mary. She never calls for Mary's birthday but she does wire me $200 to get her a present, every single year. It's basically pity money to acknowledge that Mary exists and that's it.

I'm waiting for the day I'm financially stable enough to give her back all the f**king birthday money she sent us over the years. During high school summer breaks, my mom would be angry with me because I refused to work and make money for my own expenses.

My father did pay around 2k in child support for Mary and me, but that money would go towards our health insurance and whatever remained would be for me to buy anything Mary and I needed that wasn't food, medicine or gas. I didn't want to work because summers were the only time of the year I could actually have some time for myself.

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Every summer, Mary would only be in daycare a few times a week for a few hours while I would do housework and run errands, and we would spend the rest of our time together. She certainly had some developmental delays, but by the time she was 3 and a half, Mary was already walking, talking, sleeping in her big girl bed and she was potty trained.

All of that because I worked with her and I did whatever I could to make sure she was as independent as possible. Right around that time my mom stopped seeing her therapist and she'd already been off antidepressants for a while.

She was no longer struggling with depression, she just regretted having Mary and making peace with that was the hardest thing I ever had to do. I always hoped that she would get better and that she would come around, but no medicine could help the way she disregarded Mary.

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I graduated high school and even though I had known for years that college wouldn't be a part of my reality, it was a really painful time for me because it's something I wanted. Still, after a one month trial period at my friend's mom's event planning agency, I landed a full time, well paying job.

Mom and I were a bit financially stressed because my portion of the child support ended when I turned 18, so this job really saved us and I was so excited to finally start saving money and to give Mary her own room since we were sharing one.

But since I got a new job, my mom decided to cut her hours and only work part time because she was 'tired of being the sole breadwinner' and 'she deserved to slow down and semi retire.' I was really pissed off because I had to pay for roughly 70% of all monthly expenses for the household while she would pitch in here and there, and spend the rest of her money however she liked.

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She no longer felt obligated to financially contribute. I ended up getting a second job a few months later, it wasn't a full time job because I worked from home and I got to choose my projects. I basically booked social media influecers with companies and helped them figure out if they were a good match for advertisements and campaigns.

It was really easy and I was able to make an additional $800 - $1500 a month. After about a year, I had saved enough to buy a really good used car. My mom did get me a used car for my 16th birthday but she didn't want to pay for all the repairs it needed so I spent over 3 years driving Mary and myself in an unsafe car.

I was proud of myself so you can imagine the absolute shock that ensued when my friend called me to ask me why I was selling the car I just got. My mom posted photos of my car on her Facebook and put it up for sale because, according to her, I 'didn't need a fancy car.'

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She said we could split the money and I could get a more cost effective car since I had to be more responsible with my finances. The argument that followed was our biggest one yet and we ended up establishing some strict rules when it comes to our relationship. From that moment on, our mom became like a roommate to Mary and me.

I even stopped calling her 'mom' and started using her name. I did find comfort in knowing that Mary wasn't alone in this, our mother was treating me the same and it was not us, it was never us, she's just someone who never should've been a parent.

I remodeled an upstairs office in our home and turned it into Mary's safari themed bedroom, I got us annual Disney passes, we travel and go on little road trips together, I've learned to cook pretty well and Mary loves helping me, I have 3 friends I consider family who love Mary and me unconditionally... It's a good life.

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A great f**king life, so I hate the fact that I'm subconsciously victimizing myself because of everything. I've kissed once, I've been on 2 dates with 2 different guys, I've never had s**, I never party, I take Mary to my hair and nail appointments, I take care of all of her medical appointments and therapy, I know every nursery rhyme and toy unboxing video to ever have existed on YouTube.

God I feel guilty even typing this out, but I get o**rwhelmed with sadness and bitterness when I think of the life I wanted and never got to have. I'm like a 50 year old trapped in a 21 year old girl's body. And it hurts even more when I hear how my mother compares me to my 20 year old cousin who moved to Austin for college.

The two of them go shopping together, they have brunch together, she knows all about her fun college life, the boys she's dating and she makes sure to always emphasize how lucky my aunt is to have such great, accomplished kids.

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Another things she likes to do is mention how my other cousin has won several beauty pageants, and she only does this because my friends once asked me if I'd like to apply for our school's pageant and she tried to embarrass me in front of them by saying that I 'couldn't win anything with my daddy's face.'

I throw myself a mini pity party whenever she kicks me where it hurts and then I look at Mary, at this sweet, little, soon to be 7 year old girl who just finished first grade with the most smiley and star stickers from her teacher, and I feel so ashamed of myself.

Quarantine has been difficult for us because we suddenly had to be home with our mother all the time. I had to coordinate my work and Mary's homeschooling, and I really tried to minimize all outings because Mary has asthma which makes her high risk.

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My mother, however, would go to the store twice a day just to get out, or she would go to the park, and even now that things have started to open up she was the first one to go and eat out and visit friends like it's no big deal. Because of that, another huge argument ensued and I told her that we should go our separate ways if she'll let me take custody of Mary.

I was serious and she knew that. She told me that Mary has already caused her embarrassment because she had to divorce and that she's not letting it happen a second time by making herself seem like she's unfit to parent. And she's right, I don't have much to go on even if I wanted to take her to court to claim that she's unfit, at least not with this budget.

It would completely drain my finances and I would probably lose the case and lose Mary for good. She's not abusive or hostile towards Mary, she's just.. not anything towards her. It's not even n**lect because she does pay for a few things and she will babysit if I have to run somewhere, but she's literally like a stranger/roommate to us, not a mom.

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That really crushed me and I was sitting in the kitchen thinking about everything when Mary came to ask me for a snack. I didn't hear what she said so she talked back and I yelled at her. I snapped at her for the first time ever and she looked at me the same way she looks at our mother.

I'm so terrified that I'll allow myself to become like her because she's just pushing my buttons whenever she can. At this point, all I can do I save money like crazy and gather copies of all my finances and bills as proof that I take care of Mary, and wait for a few years until I can pay for a good lawyer and court expenses.

I can't spend decades with this woman and wait until she dies and I get custody over Mary. I can't. I don't know what else to do to keep my sanity and most importantly, to stop these feelings of self pity and victimization because all they do is make me feel guilty and Mary doesn't deserve that. I need a pair of fresh eyes to read this and give me some advice.

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Raising a sibling with Down Syndrome while your mother emotionally abandons her is a Herculean task, and this 21-year-old is carrying it with grit and grace. Her mother’s refusal to relinquish custody, driven by fear of social stigma, traps them in a toxic stalemate. Her own self-pity and outbursts—like snapping at her sister—signal burnout, a common risk for young caregivers.

Dr. Lisa Holloway, a family therapist specializing in disability care (source), notes, “Young adult caregivers often face ‘parentification,’ sacrificing their youth for family duties, which can breed resentment without support.” A 2022 study in the Journal of Family Issues (source) found 70% of sibling caregivers report depression symptoms by their 20s.

In Texas, gaining custody as a non-parent is tough—courts prioritize biological parents unless clear neglect or abuse is proven (Texas Family Code §153.131). Her mother’s minimal contributions (paying for some expenses, occasional babysitting) may not qualify as legal neglect, complicating her case.

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She should connect with the Down Syndrome Association of Central Texas (DSACT) for support groups and resources like their New Parent Program (source) to ease her load. Texas RioGrande Legal Aid offers free consultations for low-income families, which could help her explore custody options without draining savings (source). Therapy, possibly through Lifeworks Austin’s sliding-scale services (source), can address her guilt and bitterness.

These are the responses from Reddit users:

The Reddit crowd showered her with empathy and practical tips, cheering her strength while urging her to find help. Here’s the unfiltered buzz:

SadnessSoup − I’m so sorry, I don’t have an answer for you. All I can say is that you are so incredibly full of love and would make the best legal guardian possible for your younger sister.

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dorknort − Reach out to Mary’s primary care physician and they can likely put you in touch with a social worker who can likely help a lot with finding outside help such as home health nurses, day programs or classes for special needs people, and additional resources. You’re doing a wonderful thing for Mary, but you must also remember to take care of yourself too.

gakkless − Maybe you don't go for such a direct, sudden approach. You clearly have a strong bond with Mary and your mother is oblivious to lots going on (I have family like this, I feel you). Would you consider moving out to your own place and, while it would be tough in the early days, try and have Mary over as much as possible for both of your sakes.

Maybe your mother would be relieved to drop her off at yours and Mary stays the night, stays another night. Over time this becomes more normalized and there isn't ever any 'you aren't fit to be a mother' moment which honestly requires a lot of therapy.

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Patriarchy is a real cunt for ingraining that idea. Anyway. You maintain a helpful, amicable but emotionally distant relationship with your mother while helping Mary as best you can: giving yourself some fresh foundations.. Hopefully this provides some possibilities for you.. I get this probably waits a few months (?????) until corona is gone-a.

rockinvet02 − Please don't take this the wrong way but it seems like the family was so accustomed to a certain standard of living that even when it become impossible to maintain, your mom still tried to live beyond her means, eventually using you to make up the gap.

You probably stay there for the benefit of Mary but I would argue that getting the hell out of there would be the best thing. My gut tells me that without you doing most of the work, your mother would gladly give you may to care for in no time at all.

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Before you say that you don't have the money to move out, here is where I would be critical of you. You need to adjust your expectations. It sounds like you are still living in the illusion that your 'normal and rightful' place is in that affluent community. It probably isn't. At least not now.

I would totally recommend finding some cheap 2 bedroom apartment somewhere where you might have to lock your doors. Most of us had that first apartment with a card table and boxes for chairs, no couch and a mattress on the floor because we couldn't afford a bed frame.

That is part of life and it sounds like it's time for you to go start yours. It won't be what you expect our what you think you deserve or what you are used to but that is just how the cards are dealt sometimes. Once you have independence from your mother, I predict Mary will follow soon after.

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She had no interest in supporting herself or caring for her child. That house is toxic and it seems you have some inkling that others have it worse off so that's a good start. Pack your stuff and go find a place, get some ramen and boxed Mac n cheese, a couple of crates to sit on and start your journey.

Girlbegone − Okay. You are in a really tough situation, but you have stepped up in an incredible way. It takes a really admirable type of person to see past their own suffering to help someone else. You are a force for good. I wish I could explain the type of impact you are having upon your sister's life, but more than that, I wish there were a way to make it easier on you.

One thing stood out to me and it's something I've heard before. Your wistfulness about what could have been and college. Society likes to push the idea that our early twenties us this amazing time of discovery and exploration and you need to go to college or you are in some way missing out.

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This is b**lshit. You aren't missing out on anything: you made a difficult choice to put someone else's needs before your own. But there is nothing to say you would have had a dream life otherwise. I enjoyed college, but as a result of it, I'm significantly in debt and I spent ten years on a myriad of prescription drugs that completely destroyed my life.

I don't talk to anyone I knew then, and I graduated less than ten years ago. It's important, in our bad times, to remember that the grass might be greener on the other side, but that doesn't mean it's better. You aren't missing out, you simply picked a different path in life. One that has demonstrably made the world a better place.

Things don't get easier, but we get better and stronger. You are going to struggle. It sounds like you are struggling now. Forgive yourself and allow yourself to struggle sometimes. You lashed out at your sister because you were in pain. Go back and apologize to her.

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Explain to her that you are human and sometimes humans act without thinking. Most importantly, show her how to apologize for making a mistake. I would put feelers out about your legal situation, but you've already said you don't need advice there. But you might reach out about getting some social support.

Talk to your friends, but maybe see about some counseling? This is A LOT to handle on your own. You've been doing an incredible job, but having someone who is unbiased and on your side can help immensely. If you can't find anyone good in network for your insurance, check with local colleges or your church.

Local colleges sometimes offer discount services and churches often offer similar counseling services. Remember to support yourself the way you support your sister. You are also important. Finally, I know I'm just a stranger on the internet, but I think you need to hear this and I absolutely believe it: it is going to be okay. You are doing a good job. Really. No exceptions. No qualifications. It will be okay and you are doing a great job. Good luck.

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MaryLlamb − You are doing wonderful things for your sister and that really shows what a kind person you are. But you've been doing so much at a very young age and I can see you are o**rwhelmed. I encourage you to find a down syndrome support group to help you deal with the stress, and offer you guidance on how to improve your and your sister's quality of life.

el_w69 − Have you accessed any community resources in Austin? If not, Lifeworks might be a good place to start - they offer housing options and you and your sister both likely qualify for their services based on your ages.

There’s also Texas Rio Grande Legal Aid if you want to consult an attorney. Your sister is very lucky to have you but I hope you’re also finding some time to take care of yourself. I admire everything you’re doing for your sister. I hope the best for y’all!

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sharkweekiseveryweek − My heart really goes out to you and Mary. You will not become your mother you clearly have a great head on your shoulders and an amazing heart. You are doing everything you can and I hope you are able to get out of there as soon as possible. You will give Mary a great life and you also deserve a life that brings you happiness and fufilment.

You have taken on more at such a young age then most people ever do in your lives. Remember that you can always pursue college later in life if you want to and as amazing as it is for you to put Mary’s needs above yours, if your mother isn’t abusive or neglectful take some time when you can (post pandemic) to live a little bit, go out with friends and maybe try casual dating.

Mary is very young right now and as she gets older she will thank you so much as she realizes all you have done for her but she will want you to also live your life. I am in tears reading this one , you are a godsend to that little girl. I wish I could say more. ❤️❤️

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MrTubbyTubby − I would take your mother to court & sue for custody, she has basically abandoned you & your sister, she isn’t paying for her daughters care ( her responsibility not yours) you will have to get CPS involved, you & your sister are being neglected, you should also Stop paying for your mother to be a freeloader, the woman should be ashamed of herself.

[Reddit User] − You are doing so well and I'm so sure Mary is proud to have you as her sister. Maybe consult a lawyer and see from there.

These Redditors see her as a hero but warn she’s burning out, pushing for legal and community lifelines. But do their calls to “get out” oversimplify her financial and emotional ties? One thing’s clear: her fight for her sister has the internet rooting hard.

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This young woman’s love for her sister shines through a life shadowed by her mother’s neglect and her own stolen youth. Her battle for custody is more than a legal fight—it’s a quest to break free from a home where love is rationed. As she saves for a lawyer and leans on her sister’s smile, she’s learning that protecting Mary means protecting herself too. Her story challenges us to ask: how do you fight for family when the system and your heart are stretched thin? What would you do to keep your sanity in her shoes? Share your thoughts below!

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